Termeer Foundation Names Rare Disease Researcher and CEO as Its 2024 Termeer Scholar

BOSTON–(BUSINESS WIRE)–The Termeer Foundation, a nonprofit organization focused on connecting life science innovators until every patient has a cure, announces Charlene Son Rigby as the 2024 Termeer Scholar. Son Rigby is the CEO of Global Genes and has dedicated her career to bridging the gap between data, technology, and the life sciences, with a focus on generating real-world impact for patients with rare genetic diseases.

“The Termeer Foundation is honored to have Charlene as our 2024 Scholar,” said Catharine Smith, Executive Director of the Termeer Foundation. “Charlene is the ultimate example of a patient advocate and biotech leader. We’re excited to share the resources in our network to continue her momentum and impact.”

Son Rigby’s commitment to rare genetic diseases stems from her daughter’s diagnosis of a rare genetic disorder. As CEO of Global Genes, Son Rigby has set ambitious goals for the RARE-X research program to enhance data-driven approaches that accelerate the development of treatments for rare diseases globally. “Rare disease therapy development is at an inflection point, bringing tremendous promise for transformational impact for rare disease patients,” said Son Rigby. “With more than 10,000 rare diseases, robust and truly scalable data collection is needed to accelerate research and clinical trial readiness.”

With this scholarship, Son Rigby will receive a grant and access to the Termeer Foundation’s values-driven leadership programming, coaching, mentorship, and network building opportunities.


The Termeer Scholar Award elevates academics and non-profit leaders who are passionate about creating change for patients, are people-focused, and are looking to translate their early-stage ideas into real-world applications. The Award supports individuals with the intention of solving the biggest problems in human health. Those selected as Termeer Scholars receive a grant to support professional development, knowledge advancement, and/or stakeholder engagement. Termeer Scholars also have access to the Termeer Foundation’s values-driven leadership programming encompassing professional development, coaching, mentoring, and network building.


The Termeer Foundation is a nonprofit organization working to connect the world of healthcare innovators until every patient has a cure. We build and support an ever-expanding network of biotech entrepreneurs, CEOs, academics, and other innovators because we believe that helping people succeed will ultimately help their innovations reach patients. Our support includes mentoring, networking, professional development, and financial grants intended to facilitate connections, break down silos, strengthen skillsets, and ultimately enable a diverse array of current and future healthcare leaders who bring much-needed solutions to patients. Find out more about The Termeer Foundation and how you can support, engage with, and join our network at www.termeerfoundation.org and on LinkedIn @TermeerFoundation.


For questions or comments about the Termeer Scholarship or the Termeer Foundation, please contact:

Catharine Smith

Executive Director, Termeer Foundation